Cover
story Catholic and antiabortion, he needs fetal tissue
operation
By ALAN BAVLEY
Special to the National Catholic Reporter
Albert Brooks is staunchly antiabortion. He opposes abortion for
any reason. Yet Brooks, a Catholic, is hoping that tissue from aborted 8- to
10-week-old fetuses will save his life.
Brooks, 57, of Centerview, Mo., has Huntington's disease, a fatal
degenerative brain disorder. He is losing control over the movement of his body
and is slowly being robbed of his intellect.
Physicians offer Brooks little hope. There has been no cure for
this fatal disorder or even any treatment to slow its progression. But earlier
this year, researchers at a Los Angeles hospital reported they had transplanted
tissue from human fetuses into the brains of several Huntington's patients with
incredible results.
Patients quickly regained the ability to walk unassisted and to
speak intelligibly and they have maintained that improvement, researchers
said.
Brooks will have the experimental surgery in mid-November, as soon
as fetal tissue is available, according to his son Steve of Kansas City,
Mo.
Huntington's disease usually strikes in midlife, between the ages
of 30 and 45. Early symptoms include depression, emotional outbursts, fidgeting
or clumsiness. As it progresses, sufferers become confused and forgetful. They
lose control of their body. Walking becomes difficult. Their arms and legs move
ceaselessly. Treatment has been limited to drugs that relieve symptoms.
Friends have been helping to raise the $50,000 cost. Steve Brooks
said about $16,000 has come in from donors, and an equity loan on his father's
house would pay the rest.
Albert Brooks, a member of Catholics for Justice, an organization
devoted to promoting peace and justice in society, doesn't see a contradiction
between his faith and antiabortion stance and medical research that depends on
abortions. Brooks said he would not wish any woman to have an abortion. But, he
reasons, if an abortion occurs, why waste human tissue that can benefit
others?
Steve Brooks said his father had long opposed abortion "as a
personal belief" but had never participated in marches or rallies. He said his
father's belief had not changed.
In a voice made slow and halting by his illness, Albert Brooks
said, "I certainly do not believe the abortion issue is relevant to this
particular operation. I look at this on the same basis as a heart transplant or
liver transplant. It's making tissue available from other donors."
Still, experimentation with human fetal tissue, typically obtained
from abortions, has become a significant factor in the nation's acrimonious
abortion debate.
Douglas Johnson, legislative director of the National Right to
Life Committee, calls research that uses tissue from aborted fetuses
exploitation of human victims.
"To the degree that society depends on unborn human beings for
spare parts, abortion is more firmly entrenched and respect for human life is
eroded," he said.
Johnson said scientists should limit their research to fetuses
obtained from pregnancies that end unintentionally, with miscarriages, for
example.
The Reagan and Bush administrations prohibited federal funding of
human fetal tissue research that involved transplants. As one of his first
official acts, President Clinton rescinded the ban.
Since then, the National Institutes of Health has awarded millions
of dollars in grants to study fetal tissue transplants as a treatment for
Parkinson's disease. These transplants already have shown promise.
Albert Brooks reasons that medical use of fetal tissue isn't going
to promote abortion. Physicians don't approach women to donate fetal tissue
until after they have had an abortion, so the possibility of a transplant never
influences their decision.
Brooks, a former budget officer for the Federal Aviation
Administration in Kansas City, Mo., has been dealing with the question for a
couple of years. In his job, he distributed $100 million each year, but he
noticed a few years ago that his mind was beginning to lose its edge. "I knew I
was having memory loss problems," Brooks said. "They were substantial. And I
couldn't ... do even routine mathematics."
Brooks went to a doctor for a physical examination in September
1994. The physician noticed Brooks' right arm was trembling. That led to months
of tests. In December of that year, Brooks received the diagnosis.
Brooks' diagnosis stunned his family. People with Huntington's
have a 50 percent chance of passing it to their children.
"We went about researching like crazy. We hit the libraries," said
Steve, 29. He said he sought genetic testing immediately. He needed to know not
just for himself, but for his 3-1/2-year-old son, Alexander. Steve came up
negative.
"At first I felt elation, mostly for my child," Steve said. "Then
guilt set in," he said, because he could not help his father.
About 30,000 people in the United States have Huntington's
disease. Another 150,000 have a parent with the disease, which puts them at
risk of developing the disorder.
So far, researchers at Good Samaritan Hospital in Los Angeles have
given transplants to six Huntington's disease patients.
Pieces of fetal brain tissue, each about one cubic millimeter, are
implanted into portions of the basal ganglia. This region of the brain, which
is responsible for coordinating muscle activity, is damaged by the disease.
"The effects have been almost immediate, in hours or days," said
Deane B. Jacques, one of the Good Samaritan researchers. "You rewire the brain
with these transplants. That tissue grows and re-establishes electrical
connections and makes hormones."
Brooks has the unreserved support of his longtime friend, Calvin
Fields, a retired Church of Christ minister from Easton, Kan. Fields described
himself as "very much an antiabortion advocate, a fundamentalist minister." But
he said he saw no conflict in using fetal tissue for lifesaving purposes.
"The basic reason I'm antiabortion is I'm pro-life," he said. "If
you're pro-life, how could you object to giving the infant tissue for someone's
life?"
Opposing this use of fetal tissue because the fetus was obtained
by abortion would be a dogmatic position, Fields said. "I'm scared to death by
absolutists. They are so focused. But life is not that simple."
Todd Brooks, Steve's brother, agrees.
"We have an opportunity right now to take what I think a lot of
people are seeing as medical waste and do something good with it. We have a
chance to save our father's life and at the same time bring a lot of attention
to Huntington's disease and help others that have it. I do not believe this is
promoting abortion."
Myra Christopher, president of the Midwest Bioethics Center in
Kansas City, described Brooks' situation as "the classic ethical dilemma."
"I'm surprised he raised the issue, but frankly I respect him for
it," she said. "I would not presume to pass judgment on him."
Alan Bavley is the medical writer for the Kansas City
Star. A version of this story appeared in the Star on Sept. 7.
National Catholic Reporter, November 8,
1996
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